Sickle Cell Society
The Sickle Cell Society has been operating for 31 years and currently supports over 13,000 people who have a Sickle Cell Disease and 250,000 people who are carriers of the sickle cell gene in the UK. Sickle Cell Disease is now the most common genetic disease in England.
The Society’s mission is to enable and assist individuals with a sickle cell disorder to realise their full economic and social potential. The services and activities provided include:
- Practical advice and advocacy regarding housing, disability benefits, NHS services and social care support
- Leading and coordinating over 30 local support groups for patients and their families, providing peer support and patient solidarity as well as social cohesion
Health workshops, seminars, conferences and education days for both patients and health care professionals - Befriending programme for peer-to-peer support, respite, hospital visiting and home help
- Provision of Welfare Fund to assist patients with home support
- Provision of Education Fund for patients whose education is frequently disrupted
- Provision of annual children’s holiday for children aged between 7 and 17
- Collaborate with research institutions to assist with research to find new treatment and cure
The Society was awarded a Runners-Up 2009 GlaxoSmithKline IMPACT Award. The IMPACT Awards recognise and reward charities that are doing excellent work to improve people’s health.
Please consider making a gift in your Will, no matter how large or small, to enable us to continue to improve people’s health.
